Muscular dystrophy advocate with new diagnosis strives for accessible medical information

EMILY HSUEH
SHAWVILLE March 31, 2021
At 16 years-old, Jenna Keindel was diagnosed with limb-girdle muscular dystrophy, a rare form of muscular dystrophy. Her muscles became weaker with each day, but no one was able to say how her condition would progress; LGMD has many genetic subtypes, and the doctors could not find any genes responsible.
As an active member of the muscular dystrophy community, Keindel met many people affected by the incurable disease and joined several support groups online. It was in one of these groups that she came across . . .

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