MANSFIELD ET PONTEFRACT
June 9, 2018
One family continued their fundraising efforts in support of the Cystinosis Research Foundation (CRF), as they see the good that their work helps with everyday.
For the Lepack family, every day they’re able to see MaryLynn Lepack succeed and smile, they know that fundraising events, like Saturday’s annual golf tournament at the Pontefract Golf Club, are well worth it.
“It’s been going great, the community has been awesome,” said MaryLynn’s mother, Marthe Drolet, of support received. “It’s a small town with a big heart.”
Nine-year-old MaryLynn was born with cystinosis, which is a genetic, metabolic disease that leads to a build-up of cystine in her cells. As cystine accumulates, the various cells die off early, which can lead to many greater health issues, including blindness, diabetes, organ failure and much more.
Drolet detailed how the last year has seen it’s ups and downs, but that through it all, the family has continued their fighting spirit as they look forward to advanced medicine and hope to see a cure.
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