The Pontefract Golf Club hosted a tournament last Saturday in support of the Cystinosis Research Foundation, raising over $5,000. MaryLynn Lepack, left, was the day’s guest of honour, as the money raised by her mother Marthe Drolet, right, and her team will hopefully one day fund a cure for the disease.
Donald Teuma-Castelletti
PONTEFRACT June 24, 2017
Every time an eight-year-old Mansfield girl steps outside, she must put on her sunglasses. She could start puking at anytime, she’s constantly in and out of the hospital and requires a mix of medications all the time.
For MaryLynn Lepack, this is her reality everyday. Suffering from cystinosis, a genetic, metabolic disease, her body has an excessive build-up of the amino acid cystine in her cells. This disease negatively affects and destroys all major organs in the body and doesn’t have a cure.
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